honkeyplonk: Halloween

Monday 2 November 2009

Halloween

Halloween 07, I trudged the streets with Jordan and Max. I was pregnant with Sam. That night we discussed how next year we'd dress Sam up as a pumpkin. Of course we didn't get to, and as we walked the familiar streets on Halloween 08, we missed having our lil pumpkin. But we had hope, that the following year, we would get to dress Hope as one.
Even the kids had happy tears when we dressed Hope up this year.

Of course Sammy was not forgotten; we bought him lots of goodies (as we did last year). Here's Hope looking after Sam's vampire teddy and balloon at Sam's garden.

And here's Sam's spooked up garden. Some might think it a little bad taste (ok perhaps the skeleton is, but the kids chose that, and i wasn't about to go into it with them). Perhaps it's also a little wierd to take photos of my kids at the cemetary...I wish there was some other way I could get a photo of all my kids together :O(

Isn't she just lush? I made the mittens to keep her handies warm. I made them quite big, and HOPE she'll get to wear them next year too! Mind you, think she'll be a witch next year. We saw some really cute outfits, and Jordan likes the idea of them dressing the same.

Xxx

2 comments:

Anonymous3 November 2009 at 06:20
She's already bewitched me!!!
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Jennifer Ortiz3 November 2009 at 11:28
Very sweet, and Sammys garden is so touching. Love the "Handies" remark as well, another term that made me giggle, so cute! Your kids look precious!!!!
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To say that Hope was a much wanted baby would be an understatement. Longed for, dreamed of and needed would be closer to the truth. Her big brother Sam died on Christmas day 07, leaving her Mummy, Daddy, big sister- Jordan, and big brother Max sad beyond words. Four months after lil Sam's death, and we were blessed with another pregnancy. Surely everything would be ok this time around? Sam had died of a diapramatic hernia, so knowing the increased odds of having another baby with CDH, we waited before breaking the news to Jordan and Max. At 13 weeks gestation, we were given the all clear and told the baby was a boy. So why was I dreaming about a little girl called Hope?
We broke the news to an excited Jordan and Max. This is when the growing fetus was named 'Honk' (will explain this at some point). After 2 weeks of delight our bubble was burst. There was something wrong. Here began our rollercoaster. Baby Hope was diagnosed prenatally with cerebellum hypoplasia and ventriculomegaly. We were advised to...I can't even type it, but obviously we didn't. Fot the first 3 months Hope appeared to be 'normal' - against the odds, but as time went on, it is becoming clear that all may not be as well as it could be. Hope is now globally delayed, and has recently been diagnosed with epilepsy.
Did we ask for a special child? No, but we have been blessed with one. Would we turn back time? No. Hope has bought light where there was dark; smiles where there were tears. I'm sure we will learn more from her than we will ever teach her. Who knows what the future holds for Hope. But I swear, I will always do the best by her and she will know love!

Update: Hope has recently been diagnosed with a mitochondrial disorder (high lactic acidosis). Due to the fact that any findings will not provide cures or even treatments we have declined further investigations (skin and muscle biopsies seem too much ).