Today we met with the paediatric cardiologist from Bristol. He explained how many mitochondrial disorders affect the heart. I already knew this so was nervous to say the least, but hoping, praying and crossing everything that there'd be Nowt wrong with her little ticker. I mean, surely she has enough on her plate already.
I knew that dr Ch had requested some tests on the heart, but I thought, and probably for the best that today was purely consultation. Anyway, it wasn't; she had an 'echo' done on her heart.
It seemed to take a lifetime...he explained things he could see to a student doctor-but it all sounded foreign to me ( I haven't yet educated myself on the heart). Anyway.... He said 'it all seems...NORMAL'!!!!!!!?
I usually hate that word. There's not much about Hope that is 'normal'. So to hear that her heart is normal, I'm ecstatic :0D
He did say that just because it's fine now, doesn't mean it always will be. Then more good news...... He wants to see her in 2 years!!! Well, there have been times when it all seemed so bleak that she mightn't ..... But, well I guess they aren't as negative right now.
I did however get some food for thought about the whole further investigation thing. He said how with certain mitochondrial disorders, different vitamins can be given to prevent/improve things, but until we know more.... So I'm being swayed :0/
On cloud 9 for a change :0)
Thanks to everyone for the good luck wishes and prayers today! Means a lot to me n honkey
And thank to S (hope's fsw) for coming along today. I know you'll read this, and that people from Rainbow Trust read it too- you'll never know how much it means to have the support we get from you. I expect everyone there is really nice, but we think we are really lucky to have S!!!
Xxx
Oh I am so HAPPY to read this post!!!!
ReplyDeleteIt's lovely that mummy has had some nice news and your heart is a healthy one xxx
Caroline...
ReplyDeleteI'm so happy to read this latest post. This is such good news ...
Give Honk a hug from me.
... and big hug for you.
Uncle Rick
xox
Great News! We are so happy to read this! XxOo
ReplyDeleteI just found your blog and wanted to comment that your Hope is just adorable. She has a smile that melts your heart.:0)
ReplyDeletegreat news caroline am so pleased to read this, go team honk :) xxx
ReplyDeleteCaroline what is rainbow trust, my health visitor briefly mentioned a rainbow trust or rainbow house but keep forgettin to ask her about it xxx
That is really great news.
ReplyDeleteYou should take me to eavesdrop next time - I have heart echo's at least once a year and have picked up a fair amount of info!
Lots of love and I am so pleased tat you are getting supported by lovely people.
Hugs all round XXXX
Rachel B