honkeyplonk: One tomorrow!

Wednesday 27 January 2010

One tomorrow!

The above photo was taken at 11pm on the 27th January. The last photo of her
before she turns 1!

My baby girl turns one tomorrow. I can't believe it: many have commented, how quickly it's gone, I'm not so sure. It's been eventful! I guess it's a bit sad, that she's not technically a baby anymore. But of course, she very much is. She most definitely is not a toddler.

Daddy has the day off work tomorrow. I'm looking forward to opening her cards and presents with her. We are taking her to the craft village and getting her hand and footprints painted onto a plate, then when the kiddlies get home we are going for the traditional birthday celebration (for us anyway) to Frankie and Benny's.

Xxx

2 comments:

Purple Quilter Queen28 January 2010 at 08:53
Oh Happy Birthday Honk!! You are 1 today!! Yeah!! Hope you have a great day and lots of fun with your mommy, daddy and brother and sister. You are a very lucky little girl Here's to another year sweetie! Jenn
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Anonymous29 January 2010 at 15:15
Happy Birthday beautiful girl!
Technically you are still a baby - your age is still counted in months rather than years, so fear not Caroline she is still little!
So pleased you all had a lovely day of celebrating a whole year with this wonderful child.
Hope brings such joy, and teaches us all so much with her sunny smile and her bravery and stoicism. If only I could take things in my stride and stay so positive. Hope, you humble us all and we are in awe of you sweetheart.
Loads of love and hugs to Honkie and all her family. Here's to the first year of many, and to quote Mummy - let's hope the next one is less "busy" medically-speaking!
Love always, Rachel, David, James & angel Joshua XXXX
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To say that Hope was a much wanted baby would be an understatement. Longed for, dreamed of and needed would be closer to the truth. Her big brother Sam died on Christmas day 07, leaving her Mummy, Daddy, big sister- Jordan, and big brother Max sad beyond words. Four months after lil Sam's death, and we were blessed with another pregnancy. Surely everything would be ok this time around? Sam had died of a diapramatic hernia, so knowing the increased odds of having another baby with CDH, we waited before breaking the news to Jordan and Max. At 13 weeks gestation, we were given the all clear and told the baby was a boy. So why was I dreaming about a little girl called Hope?
We broke the news to an excited Jordan and Max. This is when the growing fetus was named 'Honk' (will explain this at some point). After 2 weeks of delight our bubble was burst. There was something wrong. Here began our rollercoaster. Baby Hope was diagnosed prenatally with cerebellum hypoplasia and ventriculomegaly. We were advised to...I can't even type it, but obviously we didn't. Fot the first 3 months Hope appeared to be 'normal' - against the odds, but as time went on, it is becoming clear that all may not be as well as it could be. Hope is now globally delayed, and has recently been diagnosed with epilepsy.
Did we ask for a special child? No, but we have been blessed with one. Would we turn back time? No. Hope has bought light where there was dark; smiles where there were tears. I'm sure we will learn more from her than we will ever teach her. Who knows what the future holds for Hope. But I swear, I will always do the best by her and she will know love!

Update: Hope has recently been diagnosed with a mitochondrial disorder (high lactic acidosis). Due to the fact that any findings will not provide cures or even treatments we have declined further investigations (skin and muscle biopsies seem too much ).