honkeyplonk: Camping madness

Thursday 6 August 2009

Camping madness

O
M
G
It's dark, cold, and very windy. And we are in a tent in a field! Argggghhhh. Camping with a 6 month old. Crazy? Must be!

We've been fairly lucky so far, in that we've only had a couple of showers. We've had a nice day; Jordan and max did zip wiring, max did climbing, we've had a pub dinner, then made animals out of our bodies (h,j,m and me) for the kids caberet competion, played on the park.

Hope is loving the sea air, the loud noises from the pub and being out in her pram.

But now.... J and m have freaked themselves out tellin ghost stories, hope is screaming and not taking her meds, and our neighbours are playing robbie Williams a bit too loud for bedtime. And we've gotta sleep on the floor!!!!! On airbeds of course, but still.

Happy camping :o)
Xxx
Will catch up with you when we get home (2moro morning maybe? Lol)

2 comments:

Jennifer Ortiz6 August 2009 at 15:15
I camp......in an RV ONLY! lol. I do not do tents. Last time I tried it rained so hard people washed away into the river, so not me. I admire u though. You guys have fun!!!
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rabidbutterfly15 August 2009 at 22:46
as a child, i spent many a day with my family camping! pictures in many a photo-book with me running around in a diaper in the wilderness have been spotted by my children.
however, as much as i remember loving it, my own children never got to experience it with their parents until just recently, due to finances, my oldest is 13 and youngest 6, and i have to say, you're rather brave taking a baby on such an adventure. i feel guilty, now, not trying to do the same for my own.
i hope this is something all of your children remember fondly.
we have so much fun...yeah, we do the tents (with air mattresses) and i'm not sure we'd do it any other way.
sorry for rambling, just thought i'd share...
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To say that Hope was a much wanted baby would be an understatement. Longed for, dreamed of and needed would be closer to the truth. Her big brother Sam died on Christmas day 07, leaving her Mummy, Daddy, big sister- Jordan, and big brother Max sad beyond words. Four months after lil Sam's death, and we were blessed with another pregnancy. Surely everything would be ok this time around? Sam had died of a diapramatic hernia, so knowing the increased odds of having another baby with CDH, we waited before breaking the news to Jordan and Max. At 13 weeks gestation, we were given the all clear and told the baby was a boy. So why was I dreaming about a little girl called Hope?
We broke the news to an excited Jordan and Max. This is when the growing fetus was named 'Honk' (will explain this at some point). After 2 weeks of delight our bubble was burst. There was something wrong. Here began our rollercoaster. Baby Hope was diagnosed prenatally with cerebellum hypoplasia and ventriculomegaly. We were advised to...I can't even type it, but obviously we didn't. Fot the first 3 months Hope appeared to be 'normal' - against the odds, but as time went on, it is becoming clear that all may not be as well as it could be. Hope is now globally delayed, and has recently been diagnosed with epilepsy.
Did we ask for a special child? No, but we have been blessed with one. Would we turn back time? No. Hope has bought light where there was dark; smiles where there were tears. I'm sure we will learn more from her than we will ever teach her. Who knows what the future holds for Hope. But I swear, I will always do the best by her and she will know love!

Update: Hope has recently been diagnosed with a mitochondrial disorder (high lactic acidosis). Due to the fact that any findings will not provide cures or even treatments we have declined further investigations (skin and muscle biopsies seem too much ).