Me again. 2nd depressing blog in one day. But this is my only release. I want to scream really loud. Bang things. Cry. But I can't. I can't even talk to anyone because I don't want Jordan and Max to hear anything. So I'm here. Tapping away on my iPhone. Hope is at the milk bar (ie me) as usual. Jordan is on the laptop. Chris and max have gone out to get trainers and lunch for max tomorrow. (my lil max is off to London tomorrow by himself. Chris couldn't get the time off work, and Swindon Town can hardly play without their keeper, so he's going with the centre of excellence director).
On the surface, everything seems normal. But it's not!
I feel like I am grieving. Again. But inside. I feel like my legs could give way. Not sure how long I can keep up...will just keep trying for the sake of the kids.
We visited my gran today. She'll be 80 this year. I didn't tell her anything. As much as possible I've avoided sharing bad news about HOpe with her.
But she knew.
She was saying how perfect her skin is. The softest ever.
Such blue eyes
That she's worried about Hope.
That she doesn't want to upset me
That I should just enjoy her
Because we don't know how long she's got
I keep thinking about that. I mean we don't know it's M.E.L.A.S yet... That's what Chris keeps saying.
But, as far as I can see, and my understanding is this...
Her body is not functioning properly
The acid will build up in her organs
And fail :0(
How long? Years? I fooking hope so. But how many? 5? That's not enough. Nor is 10. Or 30.
I shouldn't be thinking of this. I don't want to
I keep hoping they are wrong. But it's not going to be nothing.
Thank you all for the lovely messages by the way
1 week ago